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News and Events
MAY AS LUPUS AWARENESS MONTH
On Wednesday, May 4, 2011 all 7 Lupus Agencies of NYS
sponsored the 3rd Annual Lupus Awareness Event in
Albany at the Legislative Office Building (LOB) Well to
kick off Lupus Awareness Month. Senator Joseph Griffo
was Prime Senate Sponsor and Assemblywoman
Vanessa Gibson was Prime Assembly Sponsor of the
2011 Event. A presentation in the Well was followed
by a Senate Floor Presentation led by Senator Griffo.
Lupus Leaders and Advocates from all over the state
with Senator Roy MacDonald, Senator Betty Little,
Senator Diane Savino, Senator Joseph Griffo, Senator
Kemp Hannon, and Senator David Valesky on the
Million Dollar Staircase in the NYS Senate Chamber.
LFMNNY President/CEO Kathleen Arntsen (center)
receiving the NYS Resolution declaring May as
Lupus Awareness Month in NYS from Senator
Kemp Hannon a Senate co-Prime Sponsor along
with Lupus Leaders & Advocates JoAnn Quinn,
Kate Anastasia, Ashley Ennis, Stephanie Darwak,
Violet Regan, Jaime Venditti, Jessica Rowshandel,
Jackie Taylor, & Honi Kurzeja.
NYS Lupus Resolution 2011
NYS LUPUS AWARENESS 2010
On Wednesday, April 28, 2010 all 7 Lupus Agencies of NY
State sponsored the 2nd Annual Lupus Awareness Event
in Albany at the Legislative Office Building (LOB) Well
to kick off Lupus Awareness Month. Assemblywoman
RoAnn Destito was Prime Assembly Sponsor and
Senator Joseph Griffo was Prime Senate Sponsor
of the very successful 2010 Event.
Lupus Representatives from all across New York
State on the Assembly Floor with Assemblywoman
RoAnn Destito, Prime Assembly Sponsor of the Lupus
Awareness Event & Resolution.
Lupus Foundation of Mid and NNY Representatives
Dale and Maryrose Bullock, David Arntsen, Mike and
Robin Clancy, Senator Joseph Griffo, Kathleen Arntsen,
Stephanie Darwak, and Phil Teague receiving the
2010 Lupus Awareness Resolution.
Lupus Representatives Deana Fellows, James and
Patricia Mitchell, Eileen Aman, Phil Teague,
Senator Dave Valesky, Senator Joseph Griffo,
Kathleen and David Arntsen, Maryrose and Dale
Bullock, Julie Mersereau, and Senator James
Seward in the NYS Senate Chamber.
2010 Lupus Resolution
2010 Lupus Proclamation
NYS Rheumatology Society Meeting
Lupus Foundation of Mid & NNY President/CEO
Kathleen Arntsen (left), Dr. Michelle Petri, Professor
Division of Rheumatology, Department of Medicine,
Johns Hopkins University; Co-director Hopkins
Lupus Cohort, a longitudinal study of morbidity
and mortality in systemic lupus erythematosus
(center), and Julie Mersereau, Board Chair of the
Lupus Foundation of Genesee Valley NY at the
NYS Rheumatology Society Annual Meeting held
on June 11-12, 2010 at the Grand Hyatt in NYC.
Annual Butterfly Gala
Pictured below left to right are: LFMNNY Advocate
Sandi Frear, Dr. Stephen Katz, Director of NIAMS,
LFMNNY President/CEO Kathleen Arntsen and
Allan Fox, Director, Founder and Managing Partner of
FoxKiser attending the LFA's Annual Butterfly Gala in
Washington, DC on May 12, 2010.
Pictured below left to right are: Dr. Jeffrey Siegel,
from the CDER of the FDA and his wife
Dianne McCutcheon with LFMNNY President/CEO
Kathleen Arntsen at the Butterfly Gala.
ARNTSEN RECEIVES FEDERAL APPOINTMENT
Lupus advocate and activist Kathleen
Arntsen has been appointed to a 5-year
term as a Special Government Employee
(SGE) as the Lupus Patient Representative
for the Office of Special Health Issues
with the FDA. She was originally nominated
in 2002 and the FDA has finally moved
forward on appointing SGE's to represent
additional diseases such as lupus.
She says that she is honored to represent
the lupus community and be a patient
voice at the FDA on lupus-related issues.
Kathleen Arntsen currently serves as President/CEO
of the Lupus Foundation of Mid and Northern New York
and has volunteered within the local lupus community
for the past 25 years. She has also been very active on
both the state and national level as a Patient Advocate
and is a persuasive and passionate representative
for lupus, rheumatologic, and autoimmune diseases.
She has been a tenacious voice for the lupus
community and helped in putting a face to autoimmune
disease. Kathleen strongly supports patient
empowerment and research programs aimed at
enhancing quality of life. She is the first recipient of the
ACR/ARHP Ann Kunkel Advocacy Award and
the first co-recipient of the LFA’s National Advocacy
Award. Kathleen is a graduate of Colgate University
and resides in Verona, NY with her very supportive
husband David. Congratulations Kathleen, we are fortunate
to have you as our representative and locally as our CEO!
FREAR RECEIVES NATIONAL AWARD Lupus Foundation of Mid and Northern New York
Board Member Sandra Frear being presented
with the Ann Kunkel Advocacy Award by Association
of American College of Rheumatology President
Stanley Cohen, MD (left) and Rheumatology Health
Professionals President Pamela Degotardi (right)
at the opening session of the ACR/ARHP Annual
Scientific Meeting on October 17, 2009 in Philadelphia, PA.
SAVE THE DATE
12th Annual Lupus Charity Golf Classic
Friday, August 10, 2012
Shenendoah Golf Club
at Turning Stone Resort
ANNUAL RESEARCH DONATION
Lupus Research Institute Chairmen Jack Lavery (left)
and Robert Ravitz (right) receive our largest ever
Research Donation of $24,000 which represents 1/3 of our
annual income for 2010 from Lupus Foundation of Mid and NNY
President/CEO Kathleen Arntsen on October 18th at the
LRI Annual Scientific Meeting at the New York Marriott Marquis.
We have now donated $151,500 to the LRI in the past 9 years.
Contact Us:
Lupus Foundation of Mid and Northern New York, Inc.
PO Box 139
Utica, NY 13503
Telephone 315-829-4272
Toll Free Phone 1-866-258-7874 or 1-866-2-LUPUS-4
Fax 315-829-4272
e-mail lupusmidny@aol.com
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