 |
|
 |
|
|
|
|
|
 |
|
|
Welcome
For the past 35 years, the Lupus Foundation of Mid and Northern New York, Inc. has been providing local education, support, and outreach services for people with lupus and their loved ones, and promoting programs of public awareness, advocacy, and research. For the Fiscal Year ending on September 30, 2011 our organization's administrative costs were only 1.0% leaving 99.0% of every dollar raised going directly to our Program Services!
It is our hope that if you have lupus or know someone who has lupus you will use this website as a tool to take control and learn to live with lupus. We realize that lupus does not just affect an individual; lupus affects the entire family. We are here for you as you and your loved ones continue on your lupus journey.
News & Events
FIRST LUPUS TREATMENT IN 56 YEARS!
Click Here for FDA Announcement
LRI National Coalition Announcement
Benlysta Q & A
URGENT ACTION NEEDED ON BENLYSTA® ACCESS ISSUES
Make Your Voices Heard by Clicking Here
ANNUAL RESEARCH DONATION
Lupus Research Institute Chairmen Robert Ravitz (left)
and Jack Lavery (right center) receive our largest ever
Research Donation of $31,000 which represents 1/3 of our
annual income for 2011 from Lupus Foundation of Mid and NNY
President/CEO Kathleen Arntsen (left center) and
Board Member Jackie Taylor (right) on October 17th at the
LRI Annual Scientific Meeting at the New York Marriott Marquis.
We have now donated $182,500 to the LRI in the past 10 years.
During the LRI Scientific Meeting the Lupus Research Institute
announced a Groundbreaking Global Research Initiative
Click Here
While in New York Kathleen and Jackie visited Z100 Radio
Station along with fellow advocate Julie Mersereau, Board
Chair of the Lupus Foundation of Genessee Valley, NY
to tape a segment about Lupus for Tuned 2 Health Radio Show
Z100 Radio Show guests Julie Mersereau (left) and
Kathleen Arntsen (right) pictured with Talk Show Host
Juanita Sifflet (center) on October 18, 2011 in NYC
RECORDBREAKING EVENT !
The 11th Annual Lupus Charity Golf Classic was held
on Friday, August 12, 2011 at Shenendoah Golf Club
at Turning Stone Resort Casino with a recordbreaking $42,000
in net proceeds being raised! For pictures and results
Click Here
LUPUS AGENCIES OF NEW YORK STATE EXHIBIT
AT THE NY STATE FAIR FOR 22ND YEAR!
For more photos Click Here
MAY AS LUPUS AWARENESS MONTH
LUPUS AWARENESS DAY 2011 IN NY STATE CAPITAL
Senator Joseph Griffo, Lupus Foundation of Mid & NNY
President/CEO Kathleen Arntsen, Assemblywoman
Vanessa Gibson, Senator Diane Savino, and Lupus
Agencies of New York State Leaders Kate Anastasia,
Jackie Barry, Violet Regan, Kara Moran, JoAnn Quinn,
and Honi Kurzeja receiving the NYS Resolution declaring
May as Lupus Awareness Month in New York State on
Wednesday, May 4, 2011 in the Legislative Office Building
(LOB) Well in Albany, New York.
For more photos of the Awareness Event
Click Here
NYS Lupus Resolution 2011
7th ANNUAL LUPUS EDUCATION SYMPOSIUM
"Decades of Progress, Promise & Possibilities"
The 7th Annual Lupus Education Symposium and Luncheon was held on Saturday,
May 14, 2011 at the Rossetti Education Center with 100 registrants attending.
Symposium speakers Dr. Marc Chevrier & Dr. Raquel Rosen.
For more Symposium pictures
Click Here
SAVE THE DATE
12th Annual Lupus Charity Golf Classic
Friday, August 11, 2012
Shenendoah Golf Club at Turning Stone Resort
Patrick Rd. Verona, NY
Registration 11:30 am; Shotgun Start 1:00 pm
Awards Dinner 6:30 pm
LFMNNY Advocate Receives Federal Appointment
Click Here
If you are Photosensitive or just want to protect yourself from the sun
we just received sun protective clothing donations from Coolibar Sun
Protective Clothing. Please contact us at the office 315-829-4272
or by e-mail if interested in finding out more about these products.
Recent Education Meeting
Click Here
Research Highlights
The latest news in lupus research and drug development
Click Here
Lupus Research Institute National Coalition Clinical Trials Website
<font style="background-color: #eaffff"><script type="text/javascript" src="http://widgets.guidestar.org/gxseal?o=6965644"></script><br><script type="text/javascript"><br> new GSSealWidget('6965644','h').start();<br></script></font>
Online Shopping for Lupus Foundation of Mid and Northern NY
http://www.iGive.com/LupusMidNNY
If you are an online shopper please consider clicking on the above link and a portion of the price of your order will be donated to us. It does not cost you anything extra. We will receive an additional $5 contribution if you register and purchase something at www.iGive.com within 45 days of joining. Just make sure you sign up with iGive.com and choose us as your charity. Thank you and Happy Shopping!
Many of our documents and links require Adobe Reader.
Click Here to download a free version.
PO Box 139
Utica, NY 13503
315-829-4272 phone
315-829-4272 fax
1-866-258-7874 toll free
|
|
|
 |
|
 |