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Welcome
For the past 35 years, the Lupus Foundation of Mid and Northern New York, Inc. has been providing local education, support, and outreach services for people with lupus and their loved ones, and promoting programs of public awareness, advocacy, and research. For the Fiscal Year ending on September 30, 2011 our organization's administrative costs were only 1.0% leaving 99.0% of every dollar raised going directly to our Program Services!
It is our hope that if you have lupus or know someone who has lupus you will use this website as a tool to take control and learn to live with lupus. We realize that lupus does not just affect an individual; lupus affects the entire family. We are here for you as you and your loved ones continue on your lupus journey.
News & Events
Education Program
Free Webinar
Making Sense of Medications Used to Treat Lupus
May 17, 2012 at 1:00pm Speaker: Irene Blanco,
M.D., M.S.
Assistant
Professor
Division of Rheumatology
Albert Einstein College of
Medicine MAY AS LUPUS AWARENESS MONTH LUPUS AWARENESS DAY 2012 IN NY STATE CAPITAL
 Kara Moran, Honi Kurzeja, Julie Mersereau, Senator Joseph Griffo,
Lupus Foundation of Mid & NNY President/CEO Kathleen Arntsen,
Assemblywoman Vanessa Gibson, Senator Catharine Young,
Assemblywoman Ellen Jaffee, JoAnn Quinn, LFMNNY Board
Chair David Arntsen, Diane Gross, and Assemblyman Matthew
Titone during the presentation of the NYS Resolution declaring
May as Lupus Awareness Month in New York State on
Wednesday, May 9, 2012 in the Legislative Office Building
(LOB) Well in Albany, New York.
For more photos of the Awareness Event
Click Here
Lupus Agencies of New York State Lead the Charge on State Advocacy The 6 NYS Lupus Agencies are once again
taking a lead on access to care issues that
impact our community. To learn more
about our efforts click here
Make Your Voices Heard!
Lupus Foundation of Mid and Northern New York
Volunteers advocate for Lupus Issues on the Hill
Congressman Richard Hanna (center) from the 24th District
in NY with LFMNNY advocates Sandi Frear, Jackie Taylor,
Kathleen Arntsen, and Maryrose Bullock.
For more pictures click here
ANNUAL RESEARCH DONATION
Lupus Research Institute Chairmen Robert Ravitz (left)
and Jack Lavery (right center) receive our largest ever
Research Donation of $31,000 which represents 1/3 of our
annual income for 2011 from Lupus Foundation of Mid and NNY
President/CEO Kathleen Arntsen (left center) and
Board Member Jackie Taylor (right) on October 17th at the
LRI Annual Scientific Meeting at the New York Marriott Marquis.
We have now donated $182,500 to the LRI in the past 10 years.
During the LRI Scientific Meeting the Lupus Research Institute
announced a Groundbreaking Global Research Initiative
Click Here
SAVE THE DATE
4th Annual Lupus Awareness Event
Lupus Agencies of New York State
Wednesday, May 9, 2012
LOB Well in Albany, NY
9:00 am to 2:30 pm
Event Poster
Legislative Presentations
Exhibit Displays
2012 Resolution
12th Annual Lupus Charity Golf Classic
Friday, August 10, 2012
Shenendoah Golf Club at Turning Stone Resort
Patrick Rd. Verona, NY
Registration 11:30 am; Shotgun Start 1:00 pm
Awards Dinner 6:30 pm
Event Poster
Sponsor Packet
Golfer Packet
While in New York Kathleen and Jackie visited Z100 Radio
Station along with fellow advocate Julie Mersereau, Board
Chair of the Lupus Foundation of Genessee Valley, NY
to tape a segment about Lupus for Tuned 2 Health Radio Show
Z100 Radio Show guests Julie Mersereau (left) and
Kathleen Arntsen (right) pictured with Talk Show Host
Juanita Sifflet (center) on October 18, 2011 in NYC
RECORDBREAKING EVENT !
The 11th Annual Lupus Charity Golf Classic was held
on Friday, August 12, 2011 at Shenendoah Golf Club
at Turning Stone Resort Casino with a recordbreaking $42,000
in net proceeds being raised! For pictures and results
Click Here
LUPUS AGENCIES OF NEW YORK STATE EXHIBIT
AT THE NY STATE FAIR FOR 22ND YEAR!
For more photos Click Here
7th ANNUAL LUPUS EDUCATION SYMPOSIUM
"Decades of Progress, Promise & Possibilities"
The 7th Annual Lupus Education Symposium and Luncheon was held on Saturday,
May 14, 2011 at the Rossetti Education Center with 100 registrants attending.
Symposium speakers Dr. Marc Chevrier & Dr. Raquel Rosen.
For more Symposium pictures
Click Here
LFMNNY Advocate Receives Federal Appointment
Click Here
If you are Photosensitive or just want to protect yourself from the sun
we just received sun protective clothing donations from Coolibar Sun
Protective Clothing. Please contact us at the office 315-829-4272
or by e-mail if interested in finding out more about these products.
Recent Education Meeting
Click Here
Research Highlights
The latest news in lupus research and drug development
Click Here
Lupus Research Institute National Coalition Clinical Trials Website
Online Shopping for Lupus Foundation of Mid and Northern NY
http://www.iGive.com/LupusMidNNY
If you are an online shopper please consider clicking on the above link and a portion of the price of your order will be donated to us. It does not cost you anything extra. We will receive an additional $5 contribution if you register and purchase something at www.iGive.com within 45 days of joining. Just make sure you sign up with iGive.com and choose us as your charity. Thank you and Happy Shopping!
Many of our documents and links require Adobe Reader.
Click Here to download a free version.
PO Box 139
Utica, NY 13503
315-829-4272 phone
315-829-4272 fax
1-866-258-7874 toll free
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