ADVOCACY IN ACTION
Lupus and Allied Diseases Association (LADA) supports
as directed by their treating healthcare professionals
initiatives that address
barriers to healthcare access in order
to ensure individuals receive the most appropriate therapies
and consistent disease management is preserved.
We strongly support establishing essential
that improve access to vital therapies; in turn reducing
physical and economic impact of disease, improving outcomes,
Dear Lupus Warriors-
Thank you for making your Voices' Heard on Lupus
legislation in New York State and helping to get these
critical lupus bills passed this year!
Education and Outreach Bill - Creates an education
and outreach program for the
autoimmune disease known
as lupus; provides for an advisory council consisting
representatives of people with lupus and their families
and health care
providers who specialize in treating lupus.
To Contact Assembly Member – find them
For Bills in the
E-mail or phone your
Senator – find him/her
Please click here to contact your public officials to
voice concerns about issues that are important
to you and your loved ones. Become part of the
solution and be proactive in improving health care.
Thank you very much.
Urge Congress to Ensure Access
to Critical Treatments
Specialty medications including biologics are critical
for treating many rare, chronic, complex, life-diminishing,
and life threatening conditions. However, some
health insurance companies are limiting patients’ ability
to access these treatments by placing them in “specialty tiers”
that require patients to pay up to 50 percent of drug costs
rather than a traditional fixed co-payment. This causes patients’
out-of-pocket costs to skyrocket to hundreds or even thousands
of dollars per month for a single medication.
The bipartisan Patients' Access to Treatment Act (H.R. 1600)
would limit patient cost-sharing requirements for specialty tier
drugs and make necessary medications more accessible
by reducing excessive out-of-pocket expenses.
Please Take a NY Minute and
Make Your Voices Heard
New York State Advocacy
We are thrilled to share the following NYS legislation with you. Here
is the Step Therapy/First Fail Bill introduced by Senator
Catharine Young S 3419-B and Assemblyman Matthew Titone A 2834-C. We are
hopeful that we can all help NYS Legislators to see the benefits of this
legislation and lend their support to move it forward to become law. It
will be our job to get the word out to as many patient and professional
societies to provide support for this important legislation.
This bill regulates Step Therapy protocol and provides a
clear and concise override process for health care
providers to follow; basically giving the prescribing
physician back their power. The Assembly Bill link is below.
Please share this with other groups.
Let's get this bill passed and signed into law this session!
As always we appreciate your support.
Senator Diane Savino and Senator Joseph
Griffo with NYS Lupus Advocates during
May Lupus Awareness Month in the Capitol
NYS Senator Kemp Hannon with LADA Advocates
Patient Advocates Travel to Capitol Hill
Congressman Richard Hanna Congressman Chris Collins
FDA Director Janet Woodcock
Congressman Hanna with LADA Advocates
SWHR Autoimmune Briefing
LUPUS AWARENESS MONTH AND
ADVOCACY IN NEW YORK STATE
Lupus and Allied Diseases Association led the charge
on a statewide effort to protect patients
regarding the NY State Medicaid Budget Proposals
Proud Advocates Kathleen Arntsen & Sandi Frear
with Ann Kunkel (center) at the Advocates for
Arthritis Event. Kathleen was the first recipient of the
ARHP Ann Kunkel Advocacy Award in November 2007 and
Sandi received it in October of 2009.