Lupus Foundation of Mid & NNY President/CEO
Kathleen Arntsen (left), Dr. Michelle Petri,  Professor
Division of Rheumatology, Department of Medicine,
Johns Hopkins University; Co-director Hopkins
Lupus Cohort, a longitudinal study of morbidity
and mortality in systemic lupus erythematosus  
(center), and Julie Mersereau, Board Chair of the
Lupus Foundation of Genesee Valley NY at the
NYS Rheumatology Society Annual Meeting held 
on June 11-12, 2010 at the Grand Hyatt in NYC.


Annual Butterfly Gala

Pictured below left to right are:  LFMNNY Advocate
Sandi Frear, Dr. Stephen Katz, Director of NIAMS,
LFMNNY President/CEO Kathleen Arntsen and
Allan Fox, Director, Founder and Managing Partner of 
FoxKiser attending the LFA's Annual Butterfly Gala in
Washington, DC on May 12, 2010.



Pictured below left to right are:  Dr. Jeffrey Siegel,
from the CDER of the FDA and his wife
Dianne McCutcheon with LFMNNY President/CEO
Kathleen Arntsen at the Butterfly Gala.




 ARNTSEN RECEIVES FEDERAL APPOINTMENT

Lupus advocate and activist Kathleen
Arntsen has been appointed to a 5-year
term as a Special Government Employee
(SGE) as the Lupus Patient Representative
for the Office of Special Health Issues
with the FDA. She was originally nominated
in 2002 and the FDA has finally moved
forward on appointing SGE's to represent 
additional diseases such as lupus.  
She says that she is honored to represent
the lupus community and be a patient
voice at the FDA on  lupus-related issues. 

Kathleen Arntsen currently serves as President/CEO
of the Lupus Foundation of Mid and Northern New York 
and has volunteered within the local lupus community
for the past 24 years. She has also been very active on
both the state and national level as a Patient Advocate
and is a persuasive and passionate representative
for lupus, rheumatologic, and autoimmune diseases. 
She has been a tenacious voice for the lupus
community and helped in putting a face to autoimmune
disease.  Kathleen strongly supports patient
empowerment and research programs aimed at
enhancing quality of life.  She is the first recipient of the
ACR/ARHP Ann Kunkel Advocacy Award and
the first co-recipient of the LFA’s National Advocacy
Award and resides in Verona, NY with her very supportive
husband David.  Congratulations Kathleen, we are fortunate
to have you as our representative and locally as our CEO!