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Lupus Foundation of Mid and Northern New York
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Welcome
For the past 31 years, the Lupus Foundation of Mid and Northern New York, Inc. has been providing local education, support, and outreach services for people with lupus and their loved ones, and promoting programs of public awareness, advocacy, and research. For the Fiscal Year ending on September 30, 2009 our organization's administrative costs were only 1.5% leaving 98.5% of every dollar raised going directly to our Program Services!
It is our hope that if you have lupus or know someone who has lupus you will use this website as a tool to take control and learn to live with lupus. We realize that lupus does not just affect an individual; lupus affects the entire family. We are here for you as you and your loved ones continue on your lupus journey.
News & Events
ANNUAL RESEARCH DONATION
Lupus Research Institute Chairman Robert Ravitz
receives our Annual Research Donation of $21,000
which is 1/3 of our annual income for 2009
from LFMNNY Board Member Maryrose Bullock
and LFMNNY President/CEO Kathleen Arntsen
on October 5th at the LRI Annual Scientific Meeting
in New York City at the Yale Club. We have now
donated $127,500 to the LRI in the past 8 years.
FREAR RECEIVES NATIONAL AWARD
Lupus Foundation of Mid and Northern New York
Board Member Sandra Frear being presented
with the Ann Kunkel Advocacy Award by Association
of American College of Rheumatology President
Stanley Cohen, MD (left) and Rheumatology Health
Professionals President Pamela Degotardi (right)
at the opening session of the ACR/ARHP Annual
Scientific Meeting on October 17, 2009 in Philadelphia, PA.
SAVE THE DATE
MAY IS LUPUS AWARENESS MONTH
Come join us on Wednesday, April 28, 2010 in Albany
at the Legislative Office Building (LOB) Well
to kick off Lupus Awareness Month at our
2nd Annual Lupus Agencies of NY State
Lupus Awareness Day
Take the New Confidential Lupus Survey
developed by Lupus Alliance of America
and help to update information and statistics on lupus
LUPUS AWARENESS DAY 2009 IN NY STATE CAPITAL
Lupus Agencies of New York State Leaders Honi Kurzeja,
JoAnn Quinn, Peggy Dowd, Kathleen Arntsen, Senator
Joe Griffo, Assemblywoman RoAnn Destito, Janet Murphy,
Eileen Aman, and Stephanie Mills receiving the NYS
Resolution declaring May as Lupus Awareness Month
in New York State on Tuesday, May 5, 2009 in the
Legislative Office Building in Albany, New York.
Download a copy of the Resolution Click Here
For more photos of the Awareness Event Click Here
5th Annual Lupus Education Symposium & Luncheon
Learning, Linking and Looking Ahead
was held on Saturday, May 2nd, 2009
with 120 attendees!
Assemblywoman RoAnn Destito (3rd from left)
presenting the NYS Resolution declaring May as
Lupus Awareness Month in New York State to
Lupus Foundation of Mid and Northern New York
Board Members Sandi Frear, Kathleen Arntsen
and Stephanie Darwak at the May 2nd, 2009
Lupus Education Symposium in Verona, NY.
For more symposium photos Click Here
9th Annual Lupus Charity Golf Classic
was held on Friday, August 14, 2009 at
Shenendoah Golf Club
at Turning Stone Resort Casino
For pictures and results
Click Here
If you are Photosensitive or just want to protect yourself from the sun
we just received sun protective clothing donations from Coolibar Sun
Protective Clothing. Please contact us at the office 315-829-4272
or by e-mail if interested in finding out more about these products.
Insure Patient Access
Sign the National Code of Conduct Health Petition Now
Recent Education Meeting
Click Here
National Advocacy Award Recipient
Click Here
Research Highlights
The latest news in lupus research and drug development
Click Here
Lupus Research Institute National Coalition Clinical Trials Website
Online Shopping for Lupus Foundation of Mid and Northern NY
http://www.iGive.com/LupusMidNNY
If you are an online shopper please consider clicking on the above link and a portion of the price of your order will be donated to us. It does not cost you anything extra. We will receive an additional $5 contribution if you register and purchase something at www.iGive.com within 45 days of joining. Just make sure you sign up with iGive.com and choose us as your charity. Thank you and Happy Shopping!
Many of our documents and links require Adobe Reader.
Click Here to download a free version.
PO Box 139
Utica, NY 13503
315-829-4272 phone
315-829-4272 fax
1-866-258-7874 toll free
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