Lupus Foundation of Mid and Northern New York, Inc.

Lupus Foundation of Mid and Northern New York

Welcome

For the past 34 years, the Lupus Foundation of Mid and Northern New York, Inc. has been providing local education, support, and outreach services for people with lupus and their loved ones, and promoting programs of public awareness, advocacy, and research. For the Fiscal Year ending on September 30, 2009 our organization's administrative costs were only 1.5% leaving 98.5% of every dollar raised going directly to our Program Services!

It is our hope that if you have lupus or know someone who has lupus you will use this website as a tool to take control and learn to live with lupus. We realize that lupus does not just affect an individual; lupus affects the entire family. We are here for you as you and your loved ones continue on your lupus journey.

News & Events

A RECORDBREAKING EVENT !

The 10th Annual Lupus Charity Golf Classic was held
on Friday, August 13, 2010 at Shenendoah Golf Club
at Turning Stone Resort Casino with a recordbreaking $33,000
in net proceeds being raised! For pictures and results
Click Here

MAY AS LUPUS AWARENESS MONTH

LUPUS AWARENESS DAY 2010 IN NY STATE CAPITAL

Lupus Agencies of New York State Leaders Janet Murphy,
Assemblyman Harvey Weisenberg, Kate Anastasia,
Steve Alberti, Senator Diane Savino, Kathleen Arntsen,
Pauline Ziatts, Assemblywoman RoAnn Destito,
Assemblywoman Crystal Peoples-Stokes, Julie Mersereau,
Assemblywoman Vanessa Gibson and Honi Kurzeja
receiving the NYS Resolution declaring May as Lupus
Awareness Month in New York State on Wednesday, April 28, 2010
in the Legislative Office Building in Albany, New York.
NYS Governor David Paterson also signed an official
proclamation declaring May as Lupus Awareness Month.

2010 Lupus Resolution

2010 Lupus Proclamation

For more photos of the Awareness Event Click Here

LFMNNY Advocate Receives Federal Appointment
Click Here

ANNUAL RESEARCH DONATION

Lupus Research Institute Chairman Robert Ravitz
receives our Annual Research Donation of $21,000
which is 1/3 of our annual income for 2009
from LFMNNY Board Member Maryrose Bullock
and LFMNNY President/CEO Kathleen Arntsen
on October 5th at the LRI Annual Scientific Meeting
in New York City at the Yale Club. We have now
donated $127,500 to the LRI in the past 8 years.

FREAR RECEIVES NATIONAL AWARD

Lupus Foundation of Mid and Northern New York
Board Member Sandra Frear being presented
with the Ann Kunkel Advocacy Award by Association
of American College of Rheumatology President
Stanley Cohen, MD (left) and Rheumatology Health
Professionals President Pamela Degotardi (right)
at the opening session of the ACR/ARHP Annual
Scientific Meeting on October 17, 2009 in Philadelphia, PA.

The 6th Annual Lupus Education Symposium & Luncheon
Tools for Today, Hope for Tomorrow
was held on Saturday, May 15th, 2010
with 132 attendees!

Lupus Foundation of Mid and Northern NY
Board Member & Retiree Sandi Frear (right)
receiving an appreciation gift for her many
years of service to the lupus community from
President Kathleen Arntsen at the May 15, 2010
Lupus Education Symposium in Verona, NY.

For more symposium photos Click Here

SAVE THE DATE

11th Annual Lupus Charity Golf Classic
Friday, August 12, 2011
Shenendoah Golf Club
at Turning Stone Resort

If you are Photosensitive or just want to protect yourself from the sun
we just received sun protective clothing donations from Coolibar Sun
Protective Clothing. Please contact us at the office 315-829-4272
or by e-mail if interested in finding out more about these products.

Insure Patient Access
Sign the National Code of Conduct Health Petition Now

Recent Education Meeting
Click Here

National Advocacy Award Recipient
Click Here

Research Highlights
The latest news in lupus research and drug development
Click Here

Lupus Research Institute National Coalition Clinical Trials Website

Online Shopping for Lupus Foundation of Mid and Northern NY

http://www.iGive.com/LupusMidNNY
If you are an online shopper please consider clicking on the above link and a portion of the price of your order will be donated to us. It does not cost you anything extra. We will receive an additional $5 contribution if you register and purchase something at www.iGive.com within 45 days of joining. Just make sure you sign up with iGive.com and choose us as your charity. Thank you and Happy Shopping!

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