Lupus Foundation of Mid and Northern New York, Inc.

Lupus Foundation of Mid and Northern New York

Blog

Your comments and suggestions are always
welcome. This blog site provides a forum for
electronic feedback and is monitored to ensure
any concerns are addressed in a timely manner.

If you need additional information, please contact
us by e-mail at lupusmidny@aol.com or by phone at
315-829-4272 or toll free 1-866-258-7874. Thank you.

Your Name*
Comments Here*
Subject
	Enter in the Code exactly as you see it before clicking the 'Submit' button.
	*Indicates required field

Posted by Bill on 6/17/2008 at 4:48:51 PM EST.
Subject: photosensitivity tips

To Sam and any others who want to know some tips about photosensitivity - There are many things you can do besides using sunscreen. You can purchase clothes that reflect UV rays, wear hats that have UV protection. Rit Dye has a product you can wash into your clothes for UV protection. Plan your outings for late in the day. Tint your windows in your car and home. Does anyone else have some good ideas? Please share...

Posted by Kathleen on 6/12/2008 at 12:30:21 AM EST.
Subject: Bronx Lupus

Tasha have your sister contact the SLE Lupus Foundation at 212-685-4118. They have a Bronx Co-op. Good luck.

Posted by Maryrose Bullock on 6/12/2008 at 12:24:21 AM EST.
Subject: Appreciation

Kathleen I want to take a moment to let you know how much I appreciate YOU and all the wonderful people that I have meet from the Lupus Foundation. I have learned so much about S L E from everyone. I have learned that I was not alone;which has made the biggest different in my life. You are one of the many angels that are in my life. I also want to thank you and everyone for all the hard work that went into the Symposium. I thought that it was WONDERFUL and full of good ideas. My sorroity sisters and family members that were with me also agree that it was wonderful and want to know if they could come back again next year. Finally I would like to thank you for my surprise award for public awareness of Lupus. I was totality Surprised! I did not see that one coming.:) :) :) :)

Posted by Sam on 5/31/2008 at 3:56:42 PM EST.
Subject: photosensitivity

What are some tips other than sun block for photosensitivity?

Posted by Tasha Moore on 5/15/2008 at 11:49:31 AM EST.
Subject: My sister and Lupus

My sister has Lupus and I am very interested in finding out more information for her sake. She now resides in Bronx, NY getting medical help from up there.

Posted by Bridget and David Snitchler on 5/9/2008 at 9:11:08 PM EST.
Subject: symposium

Thank you for such an encouraging symposium.

Posted by David on 5/9/2008 at 5:09:11 PM EST.
Subject: Symposium

Bravo on the symposium!

Posted by Mari-Kristine Neyhart on 9/20/2007 at 8:57:43 AM EST.
Subject: New York State Fair Booth

To the Lupus Foundation of Mid and Northern NY: Thank you for honoring me with the 2006 Awareness Award. I can not thank you enough for the continued support you all show for the State Fair booth. Your warmth and friendliness is what brings our visitors back year after year. Your attentiveness is what sets the standards for next year's volunteers. Together we make this event a success. Keep up the good work.

Posted by Donna Gloo on 8/14/2007 at 11:22:33 AM EST.
Subject: Charity Golf Tournament

I enjoyed volunteering at the golf tournamet last week and meeting all of you! You put on an outstanding fundraising event!

Posted by jackie on 7/25/2007 at 11:10:25 AM EST.
Subject: thank you

i dont take i could make it with out you thank you

Posted by Jennifer on 8/27/2006 at 10:48:59 AM EST.
Subject: Thanks for the information

Thank you for all the great information that you provided at the State Fair. It is refreshing to meet people who really care abut us as patients. Keep up the good work, it is appreciated

Posted by Brigid for team A-Nit-A Cure on 8/20/2006 at 1:54:09 PM EST.
Subject: golf outting

Hello one and all! We just wanted to extend our sincere congratulations to all of the volunteers, board members, etc. on a job well done at the outting this past Friday. The weather was perfect, but more then that, the entire event was well planned, enjoyable, and "top notch". Our team was very well taken care of from beginning to end. There is not one suggestion we could make for improving our day. That alone shows the level of planning and dedication that went in to making this event such a success. Our dinner guest loved the setting, the food, etc. and I loved that they were welcome to participate! Again, our sincere congratulations on a job VERY WELL done! See you again on August 10, 2007! :0)