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Lupus Foundation of Mid and Northern New York
RECENT ADVOCACY EVENTS
LUPUS AWARENESS MONTH AND
ADVOCACY IN NEW YORK STATE
On Tuesday, May 5, 2009 all 7 Lupus Agencies
of New York State came together in Albany, NY
and sponsored the first ever Lupus Awareness &
Advocacy Day in the Legislative Office Building (LOB)
3rd floor terrace. Lupus Legislative Champions
Assemblywoman RoAnn Destito, Senator Joe Griffo,
and Senator Diane Savino gave remarks.
Other exhibitors included Scleroderma Foundation,
National Kidney Foundation, Sjogren's Syndrome
Foundation, AARDA, Arthritis Foundation, and
International Institute of Human Empowerment.
We thank the legislators and their staff,
organizers, exhibitors, lupus leaders, advocates,
volunteers, and speakers for their
support in this initiative and look forward
to the 2nd Annual Awareness Day on May 4, 2010!
Assemblywoman RoAnn Destito as Prime Assembly
Sponsor of the Resolution declaring May as Lupus
Awareness Month in NY State gives remarks at
the May 5, 2009 Lupus Awareness Day In Albany.
Senator Joseph Griffo as Prime Senate
Sponsor of the Resolution declaring May as Lupus
Awareness Month in NY State gives remarks.
Senator Diane Savino, sponsor of pending lupus
legislation gives remarks at the awareness event.
LFMNNY Board Chairman David Arntsen was emcee of the
event and President/CEO Kathleen Arntsen gave remarks.
They are pictured here with the actual NYS Lupus Resolution.
Lupus Foundation of Mid and Northern NY Representatives
Stephanie Darwak, Elisabeth Iglesias, Maryrose Bullock,
Kathleen Arntsen, David Arntsen, and Sandi Frear.
LAA, NY Southern Tier Board Member Stephanie Mills and
LAA, Hudson Valley Affiliate Vice President Janet Murphy
manning the Lupus Agencies of New York State booth.
Patient Advocates Travel to Capitol Hill
ACR/ARHP Annual Advocates for Arthritis Event
Washington, DC February 24-25, 2008
Lupus Foundation of Mid and Northern New York President/CEO
Kathleen Arntsen and Secretary Sandi Frear, both members
of the Association of Rheumatology Health Professionals
participated in the Advocates for Arthritis event on
February 24-25, 2008 in Washington, DC
New York State Advocates for Arthritis visiting
NY Congressman Maurice Hinchey.
LFMNNY Secretary Sandi Frear is in the center.
Advocates Kathleen Arntsen and Sandi Frear with
Dr. Stephen Katz, Director of the National Institute
of Arthritis and Musculoskeletal and Skin
Diseases (NIAMS) at the ACR/ARHP Advocacy Event.
Proud Advocates Kathleen Arntsen & Sandi Frear
with Ann Kunkel (center) at the Advocates for
Arthritis Event. Kathleen was the first recipient of the
ARHP Ann Kunkel Advocacy Award in November 2007.
LRI National Coalition Advocacy Day
Washington, DC March 5, 2008
Lupus Foundation of Mid and Northern New York
President/CEO Kathleen Arntsen, Secretary Sandi Frear,
and Board Members Stephanie Darwak and
Ellen Gloo and Volunteer Jackie Taylor attended the
LRI National Coalition Advocacy Day on
March 5, 2008 in Washington, DC
Lupus Foundation of Mid & Northern NY Advocates
Stephanie Darwak, Ellen Gloo, Kathleen Arntsen, NY
Congressman Michael Arcuri, Jackie Taylor, & Sandi Frear
Patient Advocates Ellen Gloo, Sandi Frear, NY
Congressman Maurice Hinchey, Kathleen Arntsen
and Jackie Taylor
Sandi Frear, FL Congressman CW Bill Young,
Kathleen Arntsen, Jackie Taylor, Ellen Gloo,
and Stephanie Darwak
Sandi Frear, Stephanie Darwak, Kathleen Arntsen, IL
Congressman Donald Manzullo, Jackie Taylor, and Ellen Gloo
Stephanie Darwak, Sandi Frear, with Appropriations legislative
staffer Ron Anderson in NY Congressman James Walsh's office,
Kathleen Arntsen, Jackie Taylor, and Ellen Gloo
Congressman John Mica from Florida with his
constituent Ellen Gloo
New York State Fibromyalgia Awareness
Advocacy Event
Albany, NY May 14, 2008
Lupus Foundation of Mid and Northern New York
President/CEO Kathleen Arntsen and Board Member
Stephanie Darwak participated in a Fibromyalgia
Awareness Event in Albany, NY on May 14, 2008
Patient Advocate Kathleen Arntsen receives the
Fibromyalgia Awareness Resolution on behalf of
NYS Fibromyalgia Patients in Albany, NY on
May 14, 2008. Pictured with Kathleen are
Assembly Members George Lattimer,
RoAnn Destito and Audrey Pheffer, the
Primary Sponsor of the Resolution.
Senator Betty Little from Queensbury Primary
Sponsor of S.5907 a Legislative Resolution making
May 12-18, 2008 Fibromyalgia Awareness
Week in New York State with Patient Advocate
Kathleen Arntsen and Senator Joseph Griffo from Rome.
Kathleen was asked to serve as Mistress of Ceremonies
for the Awareness Event at the last minute when
Fibromyalgia Patient Sandi Frear became ill.
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