Lupus Foundation of Mid and Northern New York

RECENT ADVOCACY EVENTS

Lupus Foundation of Mid and Northern New York
President/CEO Kathleen Arntsen and Board
Members Sandi Frear and Jackie Taylor and
Volunteers Jane Porter and Lisabeth Iglesias 
attended the National Coalition of Autoimmune
Patient Groups Autoimmune Diseases Summit
and the LRI National Coalition Advocacy Day
 in Washington, DC on March 3 & 4, 2010
 


Patient Advocates Travel to Capitol Hill



Lupus Advocates Eileen Aman, Lisabeth Iglesias,
Kathleen Arntsen, Jackie Taylor, Sandi Frear, and
Julie Mersereau with Congressman Michael Arcuri
(center) at the LRI Coalition Advocacy Day.



LFMNNY Advocates Sandi Frear, Jackie Taylor,
Kathleen Arntsen, and Lisabeth Iglesias with
Congressman Bill Owens (center).



LFMNNY Advocates Lisabeth Iglesias, Sandi Frear,
Kathleen Arntsen, and Jackie Taylor with
Congressman Maurice Hinchey (center).



Lupus Advocates Sandi Frear, Eileen Aman,
Julie Mersereau, Lisabeth Iglesias, Kathleen Arntsen,
and Jackie Taylor pictured with Congressman
Daniel Maffei (5th from left).

AUTOIMMUNE DISEASES SUMMIT
March 3, 2010 Washington, DC
Sponsored by the National Coalition for
Autoimmune Patient Groups


LFMNNY Board Members Sandi Frear and Jackie Taylor
manning the Lupus Exhibit at the Autoimmune Summit.


LFMNNY Representatives Lisabeth Iglesias, Jackie Taylor,
Sandi Frear, Kathleen Arntsen, and Jane Porter pictured with
Author & Presenter Donna Jackson Nakazawa (4th from left).


LFMNNY Representatives Lisabeth Iglesias, Sandi Frear,
and Kathleen Arntsen pictured with actress and
autoimmune activist Melissa Joan Hart (3rd from left).

LUPUS AWARENESS MONTH AND
ADVOCACY IN NEW YORK STATE

On Wednesday, April 28, 2010 all 7 Lupus Agencies
of New York State came together in Albany, NY
and sponsored the 2nd Annual Lupus Awareness & 
Advocacy Day in the Legislative Office Building (LOB) 
Ground Floor Well.  Lupus Legislative Champions
Assemblywoman RoAnn Destito, Senator Joe Griffo,
Senator Diane Savino, Senator Betty Little, Assemblywoman
Crystal Peoples-Stokes, and Assemblywoman Vanessa Gibson 
gave remarks. Other exhibitors included Scleroderma Foundation,
National Kidney Foundation, Sjogren's Syndrome
Foundation, AARDA, Arthritis Foundation, Partnership for
Prescription Assistance, Pfizer Helpful Answers, Community
Health Charities of NY, and International Institute of
Human Empowerment.  We thank the legislators and
their staff, organizers, exhibitors, lupus leaders, advocates, 
volunteers, and speakers for their support in this initiative and look
forward to the 3rd Annual Awareness Day on May 4, 2011!


Assemblywoman RoAnn Destito as Prime Assembly
Sponsor of the Resolution declaring May as Lupus
Awareness Month in NY State gives remarks at
the April 28, 2010 Lupus Awareness Day In Albany.


Senator Joseph Griffo as Prime Senate
Sponsor of the Resolution declaring May as Lupus
Awareness Month in NY State gives remarks.


Senator Diane Savino, Co-Prime Senate Sponsor
of the Resolution declaring May as Lupus
Awareness Month in NY State and sponsor of
pending lupus legislation gives remarks at the
awareness event. 


Senator Betty Little, Co-Prime Senate
Sponsor of the Resolution declaring May as Lupus
Awareness Month in NY State gives remarks.


Assemblywoman Crystal People-Stokes, Co-Prime 
Assembly Sponsor of the Resolution declaring May
as Lupus Awareness Month in NY State gives remarks.


Assemblywoman Vanessa Gibson, Co-Prime Assembly
Sponsor of the Resolution declaring May as Lupus
Awareness Month in NY State and sponsor of
pending lupus legislation gives remarks.


ACR/ARHP Annual Advocates for Arthritis Event
Washington, DC February 24-25, 2008



Proud Advocates Kathleen Arntsen & Sandi Frear
with Ann Kunkel (center) at the Advocates for
Arthritis Event.  Kathleen was the first recipient of the
ARHP Ann Kunkel Advocacy Award in November 2007 and
Sandi received it in October of 2009.






  
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